This morning I experienced both the blue light behind my eyelids, and the ozone scent of radiation in my head. It’s a bit amazing to me that I can have such a short treatment—two minutes total—and feel any sort of effect at all, but there you have it. I feel mostly normal (for these days, that is), but I was E X H A U S T E D yesterday afternoon, and had to go lie down for an hour and a half or something. Of course, I’d spent several hours on our boat, driving around various friends, and gone to a park and had a sandwich and dragged myself up a hill to use a park bathroom (which involved me using a ninja move with my foot to flush the toilet—I was not going to touch the lever with my hand) . . . so I suppose it was a big day for someone with lungs at half-capacity.
I continue to find it amazing that the boat is such a respite from “real” life. I suppose it’s because there’s not much physical I have to do—just drive—but I’m sitting, and holding on to a wheel, so the bumps aren’t really bumping as much as for other people on board, and the wind is rushing in my face (perhaps approximating running?), and there’s sun and glint and fresh air and water, and I have a connection with my dad, even though he died 15 years ago.
But, I am a little, um, blocked up. Last night I took some Senna, and today I’ve taken Colace and a large quaff of magnesium citrate (which claimed to be “pleasantly lemony” . . . but I’m not sure my idea of “pleasant” is the same). Ah, yes, the discomforts of treatment. I continue to be awed, a little, by the number of things I’m taking to make everything work “normally.” For example, I think I’m now up to these:
1. Radiation in the morning
2. Zofran to keep from throwing up from the potential swelling of the radiation
3. Dexamethazone to keep the swelling at a minimum
4. Keppra to keep from having seizures
7. and Magnesium, all three for my bowels.
8. Baby shampoo
9. and Eucerin, to keep my head skin as healthy as possible.
Ian and I are talking about designating a part of our house, growing larger all the time, for the “therapies”. Fortunately, our dining room table gets pretty big, so we should be able to come up with a workable solution.
I am noticing a bit of a slow-down on my brain function here, too. Nothing serious, and I still seem to be both better at short-term memory, and better at multitasking than Ian. It makes me happy.